Community

Help Build Sickle Cell Awareness In Your Community.
 

If You’re a Patient, a Parent, or At Risk…

  • Pregnant or thinking of having a baby? Ask for a screening test for sickle cell trait.

  • Send your partner for screening, too.

  • Remember to ask your baby’s doctor about your newborn’s screening results.

  • Educate yourself about sickle cell disease and its treatment.

  • Stay in touch with your/your child’s doctors and follow their instructions to stay healthy.

  • Tell your child’s school about special sickle cell needs upon enrollment.

  • Tell your employer about your sickle cell needs upon hiring.

  • Connect with a hospital that treats sickle cell BEFORE you have a crisis.


If You’re a Family Member or Friend…
 

  • Understand that sickle cell families need support.

  • Stay in touch. Let them know you’re there to help.

  • Offer child care and transportation when it’s needed.

  • Encourage young adults to learn about their disease and stay
    up-to-date with self-care.

  • Ask for screening for sickle cell trait, and If possible, donate blood.
     

If You’re a School Administrator…
 

  • Make sure your staff knows if a student has sickle cell disease.

  • Connect with Sickle Cell experts who can advise your students and staff
    about sickle cell.

  • Hold an “Awareness Day” to educate teachers, staff and students about sickle cell.

  • Coordinate with your students’ parents and physicians to get help quickly in a crisis.

  • Have alternative learning plans available for students during illness.

  • Hold a blood drive at your school.
     

If You’re an Employer…
 

  • Make information about sickle cell available through your health services department.

  • Understand that your employees may have periods of absence when they or their children are in sickle cell crisis.

  • Support patients’ efforts to obtain routine medical care so they can stay well
    and keep working hard.

  • Make family medical leave easily available.

  • Host blood drives.


If You’re a Health Care Provider…
 

  • Include sickle cell trait and disease on your patient history form.

  • Become familiar with the protocol for treating a sickle cell crisis.

  • Use the Sickle Cell Information Center – http://www.scinfo.org/ – as a resource.

  • Identify a sickle cell expert in your area.

  • Refer patients with the sickle cell trait to a genetic counselor.

  • Post information about sickle cell disease in your office. 

 

 

September is National Sickle Cell Awareness Month!

 

You can help by displaying an awareness poster during September, or year-round, at your school, workplace, church, or any place people gather.

©2018 CSC Support Group 4 Kids, Corp. All Rights Reserved.

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