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Help Build Sickle Cell Awareness In Your Community.
If You’re a Patient, a Parent, or At Risk…
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Pregnant or thinking of having a baby? Ask for a screening test for sickle cell trait.
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Send your partner for screening, too.
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Remember to ask your baby’s doctor about your newborn’s screening results.
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Educate yourself about sickle cell disease and its treatment.
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Stay in touch with your/your child’s doctors and follow their instructions to stay healthy.
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Tell your child’s school about special sickle cell needs upon enrollment.
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Tell your employer about your sickle cell needs upon hiring.
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Connect with a hospital that treats sickle cell BEFORE you have a crisis.
If You’re a Family Member or Friend…
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Understand that sickle cell families need support.
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Stay in touch. Let them know you’re there to help.
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Offer child care and transportation when it’s needed.
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Encourage young adults to learn about their disease and stay
up-to-date with self-care. -
Ask for screening for sickle cell trait, and If possible, donate blood.
If You’re a School Administrator…
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Make sure your staff knows if a student has sickle cell disease.
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Connect with Sickle Cell experts who can advise your students and staff
about sickle cell. -
Hold an “Awareness Day” to educate teachers, staff and students about sickle cell.
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Coordinate with your students’ parents and physicians to get help quickly in a crisis.
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Have alternative learning plans available for students during illness.
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Hold a blood drive at your school.
If You’re an Employer…
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Make information about sickle cell available through your health services department.
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Understand that your employees may have periods of absence when they or their children are in sickle cell crisis.
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Support patients’ efforts to obtain routine medical care so they can stay well
and keep working hard. -
Make family medical leave easily available.
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Host blood drives.
If You’re a Health Care Provider…
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Include sickle cell trait and disease on your patient history form.
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Become familiar with the protocol for treating a sickle cell crisis.
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Use the Sickle Cell Information Center – http://www.scinfo.org/ – as a resource.
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Identify a sickle cell expert in your area.
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Refer patients with the sickle cell trait to a genetic counselor.
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Post information about sickle cell disease in your office.
September is National Sickle Cell Awareness Month!
You can help by displaying an awareness poster during September, or year-round, at your school, workplace, church, or any place people gather.